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Review of National Institutes of Health Data Controls to Ensure the Privacy and Protection of Volunteers in the Precision Medicine Initiative

The FY 2016 budget provided $200 million to National Institutes of Health to help develop the Precision Medicine Initiative. The Precision Medicine Initiative plans to have more than 1 million volunteers providing their personal health information to National Institutes of Health so researchers, providers, and patients can work together toward the development of individualized care. Maintaining data security and privacy will be paramount to retaining the volunteers´┐Ż trust and participation in the Precision Medicine Initiative. We will determine the controls National Institutes of Health has developed to ensure privacy and protection of the volunteers´┐Ż personal health information.

Announced or Revised Agency Title Component Report Number(s) Expected Issue Date (FY)
Completed (partial) National Institutes of Health Review of National Institutes of Health Data Controls to Ensure the Privacy and Protection of Volunteers in the Precision Medicine Initiative Office of Audit Services A-18-16-30530;
W-00-17-42020
2019